Kidney and Transplant Links
National Kidney and Urologic Diseases Information Clearinghouse
The NKUDIC is part of The National Institute of Diabetes and Digestive and Kidney Diseases, which is part of the National Institue of Health. There is LOTS of information here that is searchable.
Nephkids Cyber Support Group
This site gives information on how to join the Nephkids e-mail list which is for parents and caregivers of children with various chronic kidney diseases. There is also a lot of information about many types of kidney diseases and problems as well as dialysis and transplantation.
IVP Patient Guide
An easy to understand discription of itravenous pyelography.
Kidney Diseases in Childhood
A great article on what kidney diseases are and what causes them as well as how they are diagnosed.
When Your Child has a Chronic Kidney Disease
An excellent article about treatment and ways to help your child.
Renal Support Network
This site offers links for support and education as well as news and other information.
Contains lots of information about kidney issues as well as support. There is a bullitin board as well as info about diet and other tips.
- Renal Info
Support and resources for people with kidney disease
- Renal Nutrition
A short list of links relating to nutrition for renal patients. This is geared more toward professionals.
This site sells kitchen reference tools and cookbooks that are designed for people in ESRD.
- Renal Help Books
A list of various books dealing with kidney failure, including recipe books for renal patients. It also gives information about who put out the book.
- Pathology of Renal Cystic Disease
Talks about various forms of renal cystic diseases and also has links to images. This site is geared more toward professionals.
A Guide to Chronic Kidney Disease
This site has information about how the kidney works, what causes kidney failure and other information.
The on-line version of the journal "Dialysis and Transplantation."
A site put together by a renal patient. Has links and information about books as well.
End Stage Renal Disease: Choosing a treatment that's right for you
This site is full of information about treatment choices along with pros and cons of each and other useful information you will deal with when in end stage renal disease.
This site has information about professional and patient information and education.
- Kidneeds: Dedicated to the study of MPGN type II
A site with information about the organization Kidneeds as well as MPGN type II.
Kidney Patient Guide
This site has a lot of great information for kidney patients and their family. It not only talks about the physical aspects, but the emotional as well. There is even a kidney patient message board.
- The National Kidney Foundation
A large site with information for patients and professionals about various events and news.
- American Society of Pediatric Nephrology
Information about the history and goals of this organization as well as their newsletters and other information. Geared toward medical professionals.
- The American Association of Kidney Patients
This site has news and information about kidney issues and links as well as information about how to become a member.
- Southwest Pediatric Nephrology Study Group
This site contains information on clinical trials and other studies developed by SPNSG.
- Renal World
This site is a little confusing to get around in, but there are many links for kidney patients and professionals.
- The Nephron Information Center
This site has lots of links and news information. There is also information on support groups for patients, locations of dialysis centers and much more.
Yahoo! Health: Blood Urea Nitrogen (BUN)
Talks about drawing blood as well as what BUN is and why it is monitored.
Yahoo! Health: Creatinine
Explains how blood is drawn. Talks about what creatinine is and why we check for it.
- Hardin MD: Nephrology and Urology
This has many links to other sites with nephrology and urology information.
- MedMark: Nephrology
Has a large list of nephrology sites.
- Springer Link: Pediatric Nephrology
An on-line pediatric nephrology journal with articles dealing with children with kidney problems. They are quite technical and mostly geared toward professionals.
- Nephrology Dialysis Transplantation Online
A nephrology journal with on-line articles. Geared toward professionals.
Health Central: Renal Biopsy
Information about how this test is performed, the risks, how to prepare and other information about renal biopsy.
Atlas of Diseases of the Kidney
This site is geared towared professionals. It contains the information from five volumes of text on kidneys and kidney disease.
The Nephcure Foundation
A non-profit organization that is working to save kidneys threatened by glomerular injury.
Kidney Kids Support Group
Kidney Kids is a group in New Zealand for parents and children dealing with kidney issues. This site has stories as well as information and links.
Financial Help for Treatment of Renal Failure
List of various programs to help with paying for the treatment of renal failure.
Growth Failure in Children with Kidney Disease
This site explains why kidney failure causes poor growth in children.
Creatinine Conversion Calculator
Here you can convert creatinine mg/dl (USA uses) to umol/L (Europe uses - and others) and vice versa.
Peritoneal Dialysis Dose and Adequacy
This site talks about the various forms of peritoneal dialysis as well as aspects about peritoneal dialysis.
Health Central: Transplant Rejection
This includes information about what transplant rejection is, what the causes, prevention, symptoms, and treatment options.
Cincinnati Children's Hospital: Overview of Kidney and Bladder
Lots of links to information about conditions, home care, and tests involved with the kidney and bladder.
West Midlands Perinatal Institute: Renal
Gives some information about renal development before birth and links to information on Oligohydramnios (low/no amniotic fluid), Renal tract dilation and hydronephrosis as well as a few other links with good information.
Abnormal Kidney Development
A few short explainations of abnormal kidney development.
HealthCentral: Kidney Function Tests
Links to information about common tests used to evaluate kidney function.
HealthCentral: Renal Arteriography
A lot of information about having renal arteriography.
HealthCentral: Renal Scan
Information about having a renal scan.
HealthCentral: Renal Venogram
Explains what happens with a renal venogram.
This is from the National Association for Alternative Medicine. It has some definitions for a few kidney related terms.
Kidneys and Urinary Tract
Explains what the kidney and urinary tract do.
Kidney Diseases - General
Many links relating to various kidney diseases.
Kidney Failure and Dialysis
Many links relating to kidney failure and dialysis.
Chronic Renal Failure
Explains what chronic renal failure is, what causes it as well as treatment and other information.
Describes what happens when you have a kidney removed.
Definition, risks, symptoms, treatment and more information about metabolic acidosis.
The Official Patient Sourcebook on Kidney Failure
A site where you can order a book called The Official Patient Sourcebook on Kidney Failure. This site involves the table of contents for the book, so you can see if it is something you would be interested in.
An easy to understand explanation of what your kidneys do.
Children's Hospital Boston
Children's Hospital of Boston has a great A-Z list of various medical conditions and treatments. You can find anything from dialysis to megaureter, to posterior urethral valves and more.
Explains what a renal biopsy is, why it is done, and what to expect.
This site is set up to offer support and information to parents of children who have had a transplant or are in need of one. There is also information and support for donor families as well as both a donor memorial college and a page for receipents who have passed away.
Give Life: The Transplant Journey
This site begins with a flash file and story about what a donor's family might experience as they journey through the process of donation.
Second Wind is an organization devoted to improving the quality of life for lung transplant reciepients, those waiting, and people with pulmonary problems and their families through support, education, and advocacy.
Children's Liver Association for Support Services
C.L.A.S.S. is an all-volunteer, nonprofit organization dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and transplantation.
Kids with Heart
Provides support, education, and information for families of children and adults with congenital heart defects and acquired heart disease.
Information about what happens when you have a pancreas transplant.
A lot of information about transplant organ rejection.
Medline Plus: Bone Marrow Transplant
An easy to read explanation of bone marrow transplant.
Medline Plus: Heart Transplant
An easy to read explanation of heart transplant.
Medline Plus: Liver Transplant
An easy to read explanation of liver transplant.
Medline Plus: Heart and Lung Transplant
An easy to read explanation of heart and lung transplant.
Medline Plus: Lung Transplant
An easy to read explanation of a lung transplant
Religious Views Concerning Organ and Tissue Donation
This site explains the views of many major religious groups concerning organ and tissue donation
Health Central: Kidney Transplantation
This site has information and links to various other questions and answers about kidney transplantation including questions about living donors.
Living Donors Online
This site has information about various living donor transplants and a message board as well as a section with personal stories.
Information for and about living donors. This site deals mostly with kidney donation.
The Living Bank
The Living Bank is the oldest and largest donor education organization in the United States. This site has lots of information about organ donation and transplantation, organ, tissue and even whole body donation.
National Transplant Society
The National Transplant Society's mission is to maximize the availability of organ and tissue donations. There are informative links with facts and questions and answers about organ donation.
Pediatric Kidney Transplantation at UCLA
Has information about their program as well as frequently asked questions.
LifeGift Organ Donation Center
This organ recovery center serves Southeast, North, and West Texas. This site has information about understanding organ and tissue donation as well as donor and recipient stories.
The organ procurment agency for Northeastern Ohio. There are facts and education as well as frequently asked questions about organ donation.
Transplant Awareness Inc.
This site sells t-shirts, books, pins and other items that have slogans that promote organ donation awareness. There are also a section with a transplant resource guide.
The Association or Organ Procurement Organizations
AOPO represents and serves organ procurement organizations through support and advocacy and help maximize the availability of organ and tissues and other issues. This site has many links that deal with organ and tissue donation and transplantation as well as links to the AOPO members. There are also frequently asked questions about organ and tissue donation.
- Brownson's Nursing Notes: Organ Donation
Has a list of several sites that deal with organ donation and transplantation.
- Transplants Living to Care
Lynchburg, Virginia's organ transplant support group. They have local events and internet links as well as a few personal stories.
- United Network for Organ Sharing
UNOS has lots of news and transplant information as well as resources.
- Life Center Northwest: Donor Network
This is a site for an organ procurement organization that covers Washington, Alaska, Montana, and Northern Idaho. There are links dealing with organ donation and transplantation as well as news of events (although not very current).
- Donate Life America
This group is made up of various organizations across the United States who are dedicated to informing the public about organ donation. There is information here about to become a donor and spread the word.
- Transplant Recipients International Organization, Inc.
TRIO offers organ donation and transplantation information as well as resources and news events.
The Sharing Network
The organ procurement organization for New Jersey. Facts, religious views and various sites.
- Children's Organ Transplant Association
COTA's primary mission is to make sure that no US citizen is ever denied a life-saving transplant or access to a transplant waiting list due solely to the lack of funds. You can get help or help others. There is also links to transplant related sites.
- National Transplant Assistance Fund
This organization helps families who need to raise money for transplant related expenses and also offer information about organ and tissue donation.
World Children's Transplant Fund
This organization tries to provide as many opportunities as possible for life-saving pediatric transplants to children all around the world. There are several programs and some links to other related sites.
The American Kidney Fund
This organization offers support for kidney patients with information and other programs.
Health Central: Transplant Rejection
The definition, causes, treatments and other issues regaurding transplant rejection.
This organization hopes to learn about the shortage of organ donations for children and how we can change that.
Donor Alliance facilitates the recovery and donations of organs in Colorado and Wyoming.
A site where you can contact other people who have dealt with a transplant as well as find information about organ donation and transplantation.
A site from the US government reguarding organ donation.
Organ Transplantation: Concept, Issues, Practice and Outcome
This is a Medscape article, you need to register for free to view it. This is a very long article with a lot of information on just about every topic related to organ transplantation.
Pediatric Issues in Solid Organ Transplantation
An article on Medscape. This article includes information on pediatric liver, kidney and heart transplantation.
Transplant Speakers International
This organization can aide in providing educational programs on organ donation in your area.
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